submitted on August 15, 2010 1:12 PM EDT |
Name: |
Darren Foltin |
Email Address: |
foltinsmusic@aol.com |
Do you or does someone you know have ALS? |
i have ALS going on 8 years |
How did you hear about this site? |
facebook |
Comments: |
Hi Aimee, How are you doing? I hope weLl! I too have a website. www.darrensnews.com . I think you'll like it. Your site is
awesome! |
|
submitted on August 3, 2010 5:55 PM EDT |
Name: |
Ben Wagner |
Email Address: |
benjaminrwagner@yahoo.com |
Do you or does someone you know have ALS? |
no |
How did you hear about this site? |
I saw a bumper sticker on the back of a maroon s.u.v. in GJ, Colo |
Comments: |
God Bless you all. I will with my family begin to pray for your healing. The Lord Jesus Christ still heals today. He is The
Cure. |
|
submitted on July 29, 2010 12:39 AM EDT |
Name: |
Coni Rainbow Foster |
Email Address: |
conifoster@comcast.net |
Do you or does someone you know have ALS? |
I have ALS, since 1996 |
How did you hear about this site? |
conifoster@comcast.net |
Comments: |
I chose life with ALS it was an easy decision, but I knees the hardship, financial, emotional, responsibility, sacrifice,
dependance on others for 24/7 care. It's not for everyone with ALS. I'm quadraplegic, have a feeding tube, tracheostomy, and
on the ventilator much of the time. I am fortunately able to have 16 hours nursing care. I fought a hard battle with my health
insurance company and won. Since then, that door was shut permanantly. ALS is perhaps the most expensive disease. I pay out
of all my long term disability insurance and social security $96 a night for a private caregiver, every night.
I have been able to watch my son who was 12 and my daughter who was 16 turn into adults, graduate from high school and college,
and my daughter have a son. I'm still a Mom, Grandma, wife, sister, Aunt. I write (2 published books), travel (twice to Hawaii
last year), organize all my care, train new caregivers and nurses, (I was a RN), maintain friendships, and inspire many to
live rather than die of ALS.
Keep fighting, don't give up. Hope for a cure, but realistically don't expect one.
Love fiercely, live fully every moment. And appreciate all the love you have around and within you.
Blessings,
Coni Rainbow Foster |
|
submitted on July 28, 2010 3:17 AM EDT |
Name: |
Gloria Hale |
Email Address: |
rotarian.gloria@gmail.com |
Do you or does someone you know have ALS? |
I have ALS |
How did you hear about this site? |
FB |
Comments: |
Great site Aimee!Beautiful family! |
|
submitted on July 26, 2010 12:32 PM EDT |
Name: |
AIMEE |
Email Address: |
16 |
Do you or does someone you know have ALS? |
Hodgkinson |
How did you hear about this site? |
jeujskvis,fkemigkdlkk; |
Comments: |
ojnygcrdfvgbgnhnhnhnhmjjjjj,jnnbbgfffffffffffffffffffffffffff |
|
submitted on July 14, 2010 3:33 PM EDT |
Name: |
Sylvia Carrizales |
Email Address: |
SylviaCarrizales@yahoo.com |
Do you or does someone you know have ALS? |
not personally but feel like I know Aimee! |
How did you hear about this site? |
newspaper article several years ago |
Comments: |
Aimee: I just read your latest blog posting and loved it.
If people didn't see it, it's at: http://www.askaboutaimee.com/id33.html
Thanks for sharing your life with us! |
|
submitted on July 2, 2010 8:27 PM EDT |
Name: |
JANE REU |
Email Address: |
reujane@yahoo.com |
Do you or does someone you know have ALS? |
My husband passed away 6 years ago after a two year battle.batt |
How did you hear about this site? |
I work with Kelly Chamernik and we've been friends for years. |
Comments: |
Just wanted to let you know I was thinking about you and your family. Your efforts have given hope and more to many. I keep
you all in my prayers. |
|
submitted on June 16, 2010 10:47 AM EDT |
Name: |
Joel Losch |
Email Address: |
jplosch2002@yahoo.com |
Do you or does someone you know have ALS? |
My sister-in-law's mother and Aimee |
How did you hear about this site? |
Saw newspaper articles about Aimee |
Comments: |
I'm not sure if I've signed your guestbook before, Aimee, but if not I apologize for not writing sooner. Last Saturday I found
out my sis-in-law's mother has ALS. You know how tough this is to hear and her husband is in denial. I pray for you and for
all others afflicted with this terribly unforgiving disease. Your attitude and perseverence are both remarkable and inspiring.
Keep up the good fight!! |
|
submitted on June 16, 2010 1:18 AM EDT |
Name: |
Beth Forsman |
Email Address: |
bethforsman@hotmail.com |
Do you or does someone you know have ALS? |
I think so. She is going for her second opinion. |
How did you hear about this site? |
The link at The ALS Great Bay Area Org |
Comments: |
Thank you for sharing your beautiful life with so many. |
|
submitted on May 20, 2010 10:22 AM EDT |
Name: |
Kim Berkemeier |
Email Address: |
kberkemeier@cinci.rr.com |
Do you or does someone you know have ALS? |
Yes, My husband |
How did you hear about this site? |
Inspire |
Comments: |
Aimee....thank you for sharing your story. My husband was diagnosed with ALS 2 yrs. ago (we actually say our family was diagnosed).
We have three children also (Kiel-16, Blayke-11, Maycee-10). I feel just as you do that they are being robbed just as you
are being robbed. Your story has touched my heart so deeply this morning. I will pray for you and your family as I pray
for mine every day. This fight is not over. We are working hard with Congress and demanding they help us in this battle.
"Never give up, Never give in" is our battle cry and we won't just take this disease laying down. May God bless you and
your family in this battle! |
|
submitted on May 15, 2010 11:53 PM EDT |
Name: |
Kevin Cannon |
Email Address: |
canke326@gmail.com |
Do you or does someone you know have ALS? |
No |
How did you hear about this site? |
Via Facebook friends with Kelly Dobes |
Comments: |
Aimee,
Your webpage letter is so touching, and I can't help but empathize with you and your struggles. I know that no one can truly
bring you answers to your troubling questions, at least no person that is. I pray that you know Jesus and that He is with
you in this time of need. Maybe that sounds cliche' or devoid of meaning, but in the big picture it is all that any of us
can hope for in our time of struggle. My time of struggle may not be this moment, but it is surely coming soon. I pray that
I will take the same advice that I am giving you now when I face the kinds of challenges that you're facing - to lean not
on your own understanding, but trust the Lord with all your heart. Proverbs 3:5 |
|
submitted on May 12, 2010 6:53 PM EDT |
Name: |
Dee Woywod |
Email Address: |
deeandjim@comcast.net |
Do you or does someone you know have ALS? |
Marty Woywod |
How did you hear about this site? |
Thru meeting you and Marty |
Comments: |
Just wanted to compliment you on the ALS Walk for Life Promo video for this years walk. It was heart warming to see and hear
Marty again & great to see you and your family. Keep fighting the good fight. The Woywod's are with you all the way. |
|
submitted on May 3, 2010 11:04 PM EDT |
Name: |
Eric Signs |
Email Address: |
eric@digitalactive.com |
Do you or does someone you know have ALS? |
yes |
How did you hear about this site? |
thru my best friend's (recently diagnosed) wife |
Comments: |
Aimee, you know too well what my best buddy Curt is going thru. Diagnosed a few months ago, he and his wife Leslie (and their
three young kids) have had their life turned upside down. I just want you to know that you are making a difference. Leslie
has mentioned you and your site to me many times. You are very special to her and I know are helping her get thru this. Thank
you for helping others. I am putting together a web site and a benefit golf outing for their family. If you are interested,
the site is: www.luttigfamily.org. But most of all, I just want you to know - you are helping others, and thank you! |
|
submitted on April 10, 2010 12:36 PM EDT |
Name: |
MaryEllen Spencer |
Email Address: |
mellanspencer@gmail.com |
Do you or does someone you know have ALS? |
no |
How did you hear about this site? |
saw a bumper sticker on a car and was curious |
Comments: |
I know this will sound far fetched and I hope someone gets this message! Most people in the US have not heard the real and
true story about LYME disease but it CAN cause a myriad of other conditions believed to be the real thing ie. Lupus or MS
but they are really caused by Lyme! My daughter has Lyme-Induced- Lupus and I have Lyme-Induced-Rheumatoid Arthritis. There
is even a huge website dedicated to Lyme-Induced- Autism (LIA.org). We live in Fairfax, VA (don't know where you are) and
have a great doctor that treats us holistically and with traditional medicine. She is an MD and Rheumatologist and treats
both adults and children with all aspects of Lyme and she treats them successfully. If you would like more information about
this check the above website I mentioned or email me: mellanspencer@gmail.com
My very best wishes to you for a cure.
Mellan |
|
submitted on April 8, 2010 5:01 PM EDT |
Name: |
lisa t |
Email Address: |
|
Do you or does someone you know have ALS? |
yes |
How did you hear about this site? |
google |
Comments: |
Nice job on this site! I'm going to see if I can get my friend to contribute. He's a wonderful person. |
|
submitted on April 5, 2010 10:37 PM EDT |
Name: |
Jodie Connelly |
Email Address: |
|
Do you or does someone you know have ALS? |
|
How did you hear about this site? |
|
Comments: |
Someone took my bumper sticker, I like to think that they wanted one and put it on their car so if you have any extras, I
will trade you for a Niagara Falls book. :) |
|
submitted on April 1, 2010 1:25 PM EDT |
Name: |
Kimberly Neas |
Email Address: |
|
Do you or does someone you know have ALS? |
|
How did you hear about this site? |
|
Comments: |
Thinking of you! You inspire courage on a daily basis. Love you lots! |
|
submitted on March 22, 2010 1:49 PM EDT |
Name: |
Sarah Beth Speciale |
Email Address: |
sbsp96@comcast.net |
Do you or does someone you know have ALS? |
|
How did you hear about this site? |
Susie or Gretchen |
Comments: |
I have wanted to check it out for a while. It is an amazing site and you and your family are amazing too. Were you an English
major in college? Your writing is touching and your courage inspiring. Hang in there in the kitchen. Maybe stay away from
sticky toffee. I bet your family would even appreciate those cookies that come preshaped (horror of horrors to a real cook).
They are actually quite tasty! |
|
submitted on March 19, 2010 5:44 AM EDT |
Name: |
dave |
Email Address: |
davemisseldine@hotmail.com |
Do you or does someone you know have ALS? |
no |
How did you hear about this site? |
through a freind |
Comments: |
it is awesome, a work of art. i have a freind called aimee who loves it. thankyou so much |
|
submitted on February 19, 2010 5:26 PM EST |
Name: |
Sylvia Carrizales |
Email Address: |
SylviaCarrizales@yahoo.com |
Do you or does someone you know have ALS? |
Aimee - I feel like I know you! |
How did you hear about this site? |
|
Comments: |
Glad to see ur back! Writing short posts will be hard but think of it as tiny composed essays instead of long ones! All ur
fans/followers will like ur writing in any form - short or long! |
|
submitted on February 15, 2010 5:12 PM EST |
Name: |
nancy |
Email Address: |
hughesgrabs4@verizon.net |
Do you or does someone you know have ALS? |
best friend-als |
How did you hear about this site? |
luck! searching on my own! |
Comments: |
aimee, you are an inspiration. i wrote you a comment on your 1/14/09 entry re;my best friend. please read if you have a minute! |
|
submitted on February 15, 2010 8:56 AM EST |
Name: |
Mary Ann Blais |
Email Address: |
blazemanmom@comcast.net |
Do you or does someone you know have ALS? |
yes |
How did you hear about this site? |
Bob Miteira |
Comments: |
In 2007 we lost our son Jon at age 35 to this disease after being diagnosed May 2nd, 2005
Jon completed the Ironman in Kona in 2005 approx. 18months into this disease...putting a face to a disease that still too
few know about.
Mary Ann
Jon's mom |
|
submitted on February 2, 2010 11:02 PM EST |
Name: |
Jeana Espinoza |
Email Address: |
jeanabean78@sbcglobal.net |
Do you or does someone you know have ALS? |
Great uncle |
How did you hear about this site? |
an article in local paper |
Comments: |
I have been following your fight for about 3 years now. I like to see how you are doing and read your blog. You have an
amazing family and I am awed by your courage. Thanks for sharing your story, it makes me much more aware of other's struggles. |
|
submitted on January 29, 2010 2:54 PM EST |
Name: |
Rita Johnson |
Email Address: |
rjrj3@verizon.net |
Do you or does someone you know have ALS? |
|
How did you hear about this site? |
On PeoplePC - News 1/28/2007 |
Comments: |
I just finished reading this 3-year-old article, and I looked up your web address to see how you are doing.
I'm thankful you are still "fighting the good fight of faith", living each day to the glory of God.
God's Words are life to those who find them AND health to all their flesh. Meditate day and night on what God says--read
His Words (the New Testament) and then remind Him of His Promises to you. God likes to be reminded of what He said! |
|
submitted on January 21, 2010 12:21 AM EST |
Name: |
Sue |
Email Address: |
suekeida@gmail.com |
Do you or does someone you know have ALS? |
|
How did you hear about this site? |
|
Comments: |
Hi Aimee!!
So glad you're back!
I have a suggestion for you that is something I'm getting a lot out of. Get The Power of Now on audio, get comfortable, and
listen and then listen again and again. It's incredible and could make your journey a little better.
It has given me a new awareness of myself in this universe!
With love,
Sue |
|
submitted on January 14, 2010 5:52 PM EST |
Name: |
Renee |
Email Address: |
Aimee's sis |
Do you or does someone you know have ALS? |
|
How did you hear about this site? |
|
Comments: |
I like your blog idea. You always were a perfectionist so I know it's hard to put anything out there that isn't fully developed
and polished. We are a very forgiving bunch!!! We all just love to hear what's new, good or bad, fragmented or perfectly worded.
So blog on!! |
|
submitted on December 15, 2009 3:54 PM EST |
Name: |
Sylvia Carrizales |
Email Address: |
SylviaCarrizales@yahoo.com |
Do you or does someone you know have ALS? |
no |
How did you hear about this site? |
news article |
Comments: |
How are you doing Aimee? Miss your writing. |
|
submitted on December 13, 2009 6:49 PM EST |
Name: |
Joni Jordan |
Email Address: |
jjordan@hlschool.org |
Do you or does someone you know have ALS? |
something similar...huntingtons disease |
How did you hear about this site? |
news |
Comments: |
Haven't had a journal entry for a few months..praying for you and your family |
|
submitted on November 28, 2009 12:52 AM EST |
Name: |
43299 |
Email Address: |
6025 |
Do you or does someone you know have ALS? |
48729 |
How did you hear about this site? |
6272 |
Comments: |
fzX92y <a href="http://dyevfuvbkqnw.com/">dyevfuvbkqnw</a>, [url=http://bjgfenqdjkel.com/]bjgfenqdjkel[/url], [link=http://bauemcrcgect.com/]bauemcrcgect[/link],
http://qwksutagriht.com/ |
|
submitted on November 25, 2009 10:45 PM EST |
Name: |
Jim and Marie Young |
Email Address: |
marielouiseyoung.81@gmail.com |
Do you or does someone you know have ALS? |
Jim Young, my husband |
How did you hear about this site? |
Link from another site |
Comments: |
Please feel free to include our caringbridge site as part of our story. Your story has been motivating and honest and a true
show of strength. www.caringbridge.org search jimyoung1 |
|
submitted on November 25, 2009 5:59 PM EST |
Name: |
Suzanne Huston Johnston |
Email Address: |
suzannejophnston99@yahoo.com |
Do you or does someone you know have ALS? |
yes |
How did you hear about this site? |
from my beautiful daughter Julie Schneider |
Comments: |
Julie and family are visiting us over
Thanksgiving. She introduced me to your
web site. Many years ago a dear friend of ours (eye doctor) had ALS. He was much older than yourself and still a strong spirited
and positive person.
Jim and I wish you all of lifes blessings and will keep you in our prayers. Good Bless you and your family.
Happy Thanksgiving.. Sue J |
|
submitted on November 24, 2009 12:21 AM EST |
Name: |
Janie |
Email Address: |
janie4pujols@aol.com |
Do you or does someone you know have ALS? |
lost my Aunt 2 years ago to ALS |
How did you hear about this site? |
came across it while researching a few years ago |
Comments: |
Aimee..i hope you are in good spirits & have had a good day upon reading this..i visit your site from time to time to check
on you & your family (we CARDS fans have to look out for each other!)..as we approach Thanksgiving, i pray you will have a
wonderful & fun-filled day with your loved ones..happy turkey day!! gobble gobble!! |
|
submitted on November 14, 2009 10:22 PM EST |
Name: |
Heather |
Email Address: |
Hkammien@yahoo.com |
Do you or does someone you know have ALS? |
Yes, my 40 yr old bro in law. Diagnosed this April. |
How did you hear about this site? |
A patient in our dental office, Janet Fluck |
Comments: |
I am excited to read about your journey as this
Crazy ALS thing is so new to our family. I heard that this site was amazing as are you! Keep
up the fight! Thanks for showing us a peek at it! |
|
submitted on November 6, 2009 3:42 PM EST |
Name: |
Karen Miller |
Email Address: |
karenm1950@yahoo.com |
Do you or does someone you know have ALS? |
no |
How did you hear about this site? |
facebook |
Comments: |
This is a very touching and enlightening story. |
|
submitted on October 18, 2009 11:03 PM EDT |
Name: |
sally long |
Email Address: |
sallong@hotmail.com |
Do you or does someone you know have ALS? |
yes, my gynecologist |
How did you hear about this site? |
my daughter |
Comments: |
|
|
submitted on October 17, 2009 6:13 PM EDT |
Name: |
Ed Pacchetti |
Email Address: |
edward.pacchetti@ed.gov |
Do you or does someone you know have ALS? |
No |
How did you hear about this site? |
Chris Murray |
Comments: |
Aimee - Wonderful website. You are an inspiration!! I live and work in Washington, DC and I often credit your husband Jim
for that. The first time I visited DC was while at IWU and I roomed with Jim and Doug Becker and one other person, maybe
Jim Pfeiffer. I remember that I had a great time with Jim and that we never got a hot shower because Doug used all of the
hot water every day...
I have been donating to ALS research for years through the Combined Federal Campaign (a federal govt. version of the United
Way) and this year, I will be donating more than ever before, totally due to how inspired I was by your spirit. I will continue
to pray for a cure.
Sincerely,
- Ed |
|
submitted on October 6, 2009 7:33 PM EDT |
Name: |
Cathy Barnes |
Email Address: |
cathybteach@mchsi.com |
Do you or does someone you know have ALS? |
no |
How did you hear about this site? |
IWU alumni magazine |
Comments: |
Hi, Aimee! I am praying earnestly for a cure and for your daily strength. You are an inspiration to all of us. I graduated
from IWU in 1982 and so did not know you, but feel as though I do from reading your website. Keep fighting!
Cathy |
|
submitted on September 28, 2009 2:10 PM EDT |
Name: |
michele johnson beck |
Email Address: |
mhb3@mchsi.com |
Do you or does someone you know have ALS? |
|
How did you hear about this site? |
|
Comments: |
Oh,Aimee,what to say? Words fall short.
We live relatively close, and I want to come and see you.You are as totally beautiful as you ever were!
Please contact me, i'm serious about a visit.
mhb3@mchsi.com 563-949-6232
I have three lovely girls 11,9 and 4 whom i've been at home with the entire time. I'm married to the man of my dreams,Allen
who is too often traveling for work!We miss him!You will be close in my thoughts and prayers(far more powerful).I pray God
blesses you in a special way today and that I hear from you soon.
Love,
Michele
|
|
submitted on September 23, 2009 12:30 PM EDT |
Name: |
david kerr |
Email Address: |
dkerr1968@yahoo.com |
Do you or does someone you know have ALS? |
brother |
How did you hear about this site? |
brainhell |
Comments: |
|
|
submitted on September 14, 2009 6:07 PM EDT |
Name: |
Carol Sladek |
Email Address: |
carol.sladek@hewitt.com |
Do you or does someone you know have ALS? |
|
How did you hear about this site? |
|
Comments: |
Aimee--I'm still tearing up each time I think of you crossing that finish line on Saturday still standing!!! (Really, did
any of us actually think you were going to get in that chair?!!) You are the most remarkable woman I have ever known--your
spirit and determination (or as Renee said, stubborness!) are unmatched. You are truly and inspiration to us all. Love you
tons.
Carol |
|
submitted on September 13, 2009 10:17 PM EDT |
Name: |
Beth Logsdon Peterson |
Email Address: |
wapiti6x66135@msn.com |
Do you or does someone you know have ALS? |
|
How did you hear about this site? |
I am friends with your sister Renee. |
Comments: |
Aimee, not sure if you remember me but I was a friend of your sister's in jr high and high school. I read about your walk
on her facebook page. I remember your beautiful red hair. I am sure you don't remember this but once I went to your house
for a sleepover for Renee's birthday. My picture happened to be in the paper the next day for a school project. Your mom
showed me the paper and the caption had my name in it. You refused to believe it was me. No matter how hard we tried to convince
you , you would not admit it was me. I believe that same kind of conviction is helping you fight your horrible disease.
I would like to contribute to the Walk4Life or an ALS foundation. Just let me know what is best. I will keep you and your
family in my prayers. Beth Peterson |
|
submitted on September 13, 2009 10:16 AM EDT |
Name: |
Renee |
Email Address: |
|
Do you or does someone you know have ALS? |
|
How did you hear about this site? |
|
Comments: |
Aimee, you were absolutely amazing yesterday, walking the entire 2 miles on your own!!! I've never seen such fierce determination.
You continue to hold on to your title of "Most Stubborn Person in the World"!!!! (and let me just add that the "revised" walk
route was a dirty trick, forcing you to walk even farther than in past years!) Great job sis!!!! |
|
submitted on September 12, 2009 3:28 PM EDT |
Name: |
Michael deKruif |
Email Address: |
aletheuo@sbcglobal.net |
Do you or does someone you know have ALS? |
I have ALS |
How did you hear about this site? |
Sister |
Comments: |
Hi Aimee and Jim,
My name is Michael deKruif (sounds like dee krife) and I was dg with Bulbar Onset ALS in December 2002. This coming December
will be 7 years. I am a 57 yr old father of two and our daughter Jessica and son-in-law, Andrew, just blessed my wife of 30+
years, Donna, and myself with a grandson Michael Joseph on Aug 17th!
My Sister Sue and my Brother-in-law live in Mundelien and they sent me the article from the Daily Herald. They have supported
me and my family from day one and stories such as yours, help other ALS patients keep up hope. I have been deeply involved
with ALS of Michigan and MDA since day one.
Tomorrow we will be doing the ALS of Michigan's Walk 'n Roll 2009.
I am still quite ambulatory and still walk and drive. My arms and upper body have weakend and my speech is labored, but, by
the Grace of God I am hanging in.
Keep up the great work Aimee and NEVER GIVE UP!
In Christ,
Michael |
|
submitted on September 10, 2009 8:30 AM EDT |
Name: |
Sally Bray |
Email Address: |
sjb1906@rogers.com |
Do you or does someone you know have ALS? |
only you |
How did you hear about this site? |
Your sister Renee is married to my cousin John |
Comments: |
Aimee, I met you several times in the past at various functions hosted by John & Renee. You always struck me as such a vivacious
and intelligent woman and I was saddened to learn about your illness. Through the years I have read the articles you have
written and though I cannot walk on your behalf (I live in Toronto), I will always continue to send a donation to this very
worthy cause. You are an inspiration to so many. As you continue in your battle, my thoughts and prayers are with you.
By the way, happy 40th! |
|
submitted on September 8, 2009 9:26 PM EDT |
Name: |
janice curatolo |
Email Address: |
mfc9800@roadrunner.com |
Do you or does someone you know have ALS? |
yes...lost about 35 members of my family |
How did you hear about this site? |
facebook |
Comments: |
Best wishes Aimee! Don't give up the fight. Keep going and don't look back. Look to the future and think that perhaps the
cure will be found with you:) |
|
submitted on September 8, 2009 4:28 PM EDT |
Name: |
Pierrette Bouchard |
Email Address: |
pierbou@comcast.net |
Do you or does someone you know have ALS? |
I have ALS |
How did you hear about this site? |
My daughter-in-law sent it to me |
Comments: |
I have been diagnosed 3 months ago but I believe that I had the disease long before now that I know what the symptoms are.
Keep smiling - it's hard but I try to. |
|
submitted on September 8, 2009 11:25 AM EDT |
Name: |
John |
Email Address: |
jknjk42@sbcglobal.net |
Do you or does someone you know have ALS? |
Yes |
How did you hear about this site? |
The Daily Herald |
Comments: |
Aimee-I read your story today and I wanted to let you know I have put you and your family in my daily thoughts and prayers.
God Bless! John |
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submitted on September 8, 2009 9:06 AM EDT |
Name: |
scott phillips |
Email Address: |
sphillips@roselle.il.us |
Do you or does someone you know have ALS? |
Yes |
How did you hear about this site? |
Daily Herald |
Comments: |
I memory of my brother Paul, See you Saturday. |
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submitted on September 8, 2009 8:28 AM EDT |
Name: |
Chrissy McDonald Westerkamp |
Email Address: |
c.westerkamp@att.net |
Do you or does someone you know have ALS? |
yes |
How did you hear about this site? |
daily herald |
Comments: |
My prayers are with you & your family. Keep going strong. You are truely an inspiration. |
|
submitted on September 7, 2009 5:14 PM EDT |
Name: |
Sue Kulick |
Email Address: |
rescuesk@verizon.net |
Do you or does someone you know have ALS? |
no |
How did you hear about this site? |
Your sister Renee is a member of Passporter |
Comments: |
Just wanted to wish you a happy 40th birthday!! {{{Hugs}}} |
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submitted on September 5, 2009 9:59 PM EDT |
Name: |
wayne bringle |
Email Address: |
geraldwayneb@att.net |
Do you or does someone you know have ALS? |
my wife |
How did you hear about this site? |
carla brinker my niece |
Comments: |
carla was just in covington tn. to visit my mother. she told me about you and that she was a good friend of yours |
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submitted on September 5, 2009 10:45 AM EDT |
Name: |
Renee |
Email Address: |
|
Do you or does someone you know have ALS? |
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How did you hear about this site? |
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Comments: |
Happy 40th Birthday Aimee! You are truly an amazing, adorable, inspirational, fabulous sister!!! I love you so much!!! Hope
you have a terrific day!! |
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submitted on August 31, 2009 8:23 PM EDT |
Name: |
Beth Nolan (Prater) |
Email Address: |
bethnolan69@hotmail.com |
Do you or does someone you know have ALS? |
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How did you hear about this site? |
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Comments: |
Aimee my thoughts and prayers are with you and Jim....I have known Jim for a very long time........ |
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submitted on August 31, 2009 8:22 AM EDT |
Name: |
Pamela Shroyer Sanders |
Email Address: |
Pjslilducks@live.com |
Do you or does someone you know have ALS? |
My sisters father -in-law died back in 1995 |
How did you hear about this site? |
Jackie Harris Fedak |
Comments: |
I will keep you and your family in my prayers Aimee |
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submitted on August 31, 2009 5:12 AM EDT |
Name: |
Vonna Washburn |
Email Address: |
vonnawashburn@yahoo.com |
Do you or does someone you know have ALS? |
Who knows for sure? |
How did you hear about this site? |
Jackie Harris-Fedak |
Comments: |
My prayers are with you it is something we all worry about that have children that we think what if. I couldn't even imagine
what your family is going through. If I could be a super Mom I would kiss your bo-bo and make it all better. I pray for you
and your family. God bless each of you and may man kind find a cure soon. Vonna |
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submitted on August 30, 2009 10:31 PM EDT |
Name: |
Amy Murdock |
Email Address: |
Amy_m_28210@yahoo.com |
Do you or does someone you know have ALS? |
No |
How did you hear about this site? |
Through Jackie Harris's facebook posting |
Comments: |
As a mother myself, my heart goes out to Aimee and her family. I had 2 strokes in 08 and suffered very minor brain damage.
I'm fine now, thank God, but I can relate to trying to relearn things I once knew so easily. Aimee is my age and we have the
same name (different spelling). Although I don't know Aimee personally, I feel a connection. Your in my prayers, just do the
best you can for yourself and your family Aimee, and know that you are cared for by so many. |
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submitted on August 30, 2009 10:27 PM EDT |
Name: |
Jackie Fedak |
Email Address: |
ditkapayton@yahoo.com |
Do you or does someone you know have ALS? |
No |
How did you hear about this site? |
Face book |
Comments: |
Praying for Aimmee and Jim and their whole family.
God Bless,
Jackie Harris |
|
submitted on August 30, 2009 4:21 PM EDT |
Name: |
Carolien |
Email Address: |
carolien.krijnen@gmail.com |
Do you or does someone you know have ALS? |
yes, my best friend is diagnosed in February 2009 |
How did you hear about this site? |
found it when looking for information about ALS to understand what was happening to my friend |
Comments: |
Dear Aimee, I admire your strentgh, sense of humour, courage and the honesty with which you express your love for your family.
I hope a cure will be found someday and untill then, you are in my thoughts. Big hug. |
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submitted on August 28, 2009 12:20 PM EDT |
Name: |
Tracy L. Hilgenberg |
Email Address: |
thilgenberg27@sbcglobal.net |
Do you or does someone you know have ALS? |
Yes |
How did you hear about this site? |
From my Friend |
Comments: |
I hope there will be a cure soon. I couln't imaging loosing my friend to this. I hope this also works for you Amiee. Hang
in there. |
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submitted on August 26, 2009 12:38 AM EDT |
Name: |
Rosevelt & Frances Henderson |
Email Address: |
chearo2002@yahoo.com |
Do you or does someone you know have ALS? |
NO |
How did you hear about this site? |
From LFUMC |
Comments: |
With God been our creator, he has the power to our lives and Aimee you are a gift to your family and kids. You will live as
long as God wants you to. Keep on going. Our family loves you and your family. God bless. |
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submitted on August 24, 2009 12:04 PM EDT |
Name: |
Donna |
Email Address: |
shell-lady1@comcast.net |
Do you or does someone you know have ALS? |
yes, my lovely daugher-in-law |
How did you hear about this site? |
from Jennifer |
Comments: |
I do believe that God has a plan and that we are not always allowed to know what that plan is. I only hope that He will show
mercy and kindness to Jennifer, David, Reiley and Jeremy and all others close to them. |
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submitted on August 24, 2009 12:04 PM EDT |
Name: |
Donna |
Email Address: |
shell-lady1@comcast.net |
Do you or does someone you know have ALS? |
yes, my lovely daugher-in-law |
How did you hear about this site? |
from Jennifer |
Comments: |
I do believe that God has a plan and that we are not always allowed to know what that plan is. I only hope that He will show
mercy and kindness to Jennifer, David, Reiley and Jeremy and all others close to them. |
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submitted on August 23, 2009 7:30 PM EDT |
Name: |
Heather Villarreal |
Email Address: |
heat_villarreal@sbcglobal.net |
Do you or does someone you know have ALS? |
Yes..one of my dearest and long time friend |
How did you hear about this site? |
She sent this site to me. |
Comments: |
I live and Texas and she lives in Illinois. I miss her dearly and wish I could be closer to her to help her and her family
out during this time. But due to distance, at this point in her stage, all I can do is text her to see how she is doing because
I can't talk to her on the phone. |
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submitted on August 23, 2009 3:07 PM EDT |
Name: |
Jennifer Cassin |
Email Address: |
davejen92802@sbcglobal.net |
Do you or does someone you know have ALS? |
I have ALS |
How did you hear about this site? |
a past co-worker Jill Carlson |
Comments: |
I am a 37 year old mother of two and a half year old twins now dealing with this disease. The site has made me cry only because
it speaks the truth, but also love the fact that you have the guts to write your lifes struggle. Thank you |
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submitted on August 20, 2009 10:47 AM EDT |
Name: |
Kay Opeka |
Email Address: |
Kdobridge@aol.com |
Do you or does someone you know have ALS? |
yes |
How did you hear about this site? |
from Aimee's family |
Comments: |
Dear Aimee, I love to read your updates, keep you in my prayers, and will see you on the 12th, k |
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submitted on August 19, 2009 11:51 AM EDT |
Name: |
Jim Chamernik |
Email Address: |
jim.chamernik@rosinglaw.com |
Do you or does someone you know have ALS? |
way too many ALS patients |
How did you hear about this site? |
word of mouth |
Comments: |
Aimee,
Just wanted to make public my admiration and love for you. For those who are reading this, please consider joining the Ask
About Aimee team at the Les Turner ALS walk at Montrose Harbor on September 12. For Aimee's 40th birthday she would like
her present to be family and friend supporting her and other ALS patients. Please join us. |
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submitted on July 31, 2009 11:28 PM EDT |
Name: |
Erica Kobige |
Email Address: |
babymama927@yahoo.com |
Do you or does someone you know have ALS? |
my friends mother has it |
How did you hear about this site? |
my friend found it and shared it with mea |
Comments: |
This is an extremely hard time for my friend and her mother. She is looking into everything she can to help educate them
on these disease. Very appreciative that you have posted your story. |
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submitted on July 28, 2009 6:44 PM EDT |
Name: |
Sue Keida |
Email Address: |
suekeida@gmail.com |
Do you or does someone you know have ALS? |
No |
How did you hear about this site? |
The Columbus Dispatch |
Comments: |
Hi Aimee!
I forgot to tell you something yesterday.
Wow, I can't believe it! We are also a multi-generational baseball-loving family!! How could I forget that?? It was one of
the first things I read about you on your site!
I still haven't found what your profession was before having the kids but if it was "sportscaster" you missed your calling!
I just read your blog and you left not one thing out, not one!!
Go Cards Aimee!
Go Yankees, Sue!!
Wishing you well today !!!
Sue |
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submitted on July 27, 2009 8:54 AM EDT |
Name: |
Sue Keida |
Email Address: |
suekeida@gmail.com |
Do you or does someone you know have ALS? |
No |
How did you hear about this site? |
The Columbus Dispatch |
Comments: |
Saved this article from I don't know how long ago! Found the email address yesterday. Very inspiring. Hope you are not tired
of hearing that, Aimee! I'm sure it could be. You live each day as we all should but don't. All any of us has is the gift
of today. Thank you for reminding me.
Sue |
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submitted on July 23, 2009 10:24 AM EDT |
Name: |
Renaté Bimbi |
Email Address: |
Rbimbi1025@aol.com |
Do you or does someone you know have ALS? |
Yes - My Dear Mom |
How did you hear about this site? |
Through my letter carrier |
Comments: |
My cup runneth over as I read the pages of your web site. My Mom was diagnosed with ALS this spring and we still struggle
daily to accept what is to come. Her disease began three years ago with the deterioration of her speech/swallowing. As her
only daughter I struggle with my own emotions daily on how I can help my Mom. We have yet to set up our first in home counseling
meeting or attend a support group but think we might be ready.
God Bless you and keep you strong!
|
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submitted on July 17, 2009 9:16 PM EDT |
Name: |
Chris Halsema |
Email Address: |
chrisshelby96@yahoo.com |
Do you or does someone you know have ALS? |
no |
How did you hear about this site? |
thru your sister-in-law, Kimberly (we used to work together) |
Comments: |
You & your family are in our prayers. We wish the best for you and pray for a cure. |
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submitted on July 13, 2009 11:40 AM EDT |
Name: |
Michele & Jaelee Rosenbaum |
Email Address: |
mmr101@aol.com |
Do you or does someone you know have ALS? |
no |
How did you hear about this site? |
we know Aimee & Emily |
Comments: |
|
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submitted on July 13, 2009 12:34 AM EDT |
Name: |
Jodie Connelly |
Email Address: |
threebrats2luv@aol.com |
Do you or does someone you know have ALS? |
Yes, Aimee |
How did you hear about this site? |
Aimee |
Comments: |
Aimee, you and your family are such an inspiration. Jim is such a great dad, even though he is not so hot on the football
field, two hand touch means two hands. The kids had a great time playing with your kids the other night come over one afternoon
and let's hang out while they jump on the tramp. I am looking forward to some of your cookies this Wednesday at the Farmer's
Market. |
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submitted on July 5, 2009 5:41 PM EDT |
Name: |
Kimberly Neas |
Email Address: |
|
Do you or does someone you know have ALS? |
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How did you hear about this site? |
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Comments: |
Aimee - you continue to amaze me everyday! You give me strength to keep a positive outlook even in the face of a crappy day.
Thank you. Love you!! |
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submitted on July 2, 2009 10:36 AM EDT |
Name: |
April Johannsen |
Email Address: |
email@AprilJ.info |
Do you or does someone you know have ALS? |
no |
How did you hear about this site? |
Cookies 4 A Cure |
Comments: |
Our family was so happy to meet you at the Farmers Market yesterday! I look forward to reading more of this site and learning
about your family and ALS. Thank you for being a source of inspiration for all parents!
April Johannsen (mom to Arabella, 11, of "Rain's Rainbow Cookies") |
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submitted on June 22, 2009 4:45 PM EDT |
Name: |
Abigail |
Email Address: |
abigailelewis@gmail.com |
Do you or does someone you know have ALS? |
no |
How did you hear about this site? |
|
Comments: |
Aimee,
I think you are one of the most extraordinary people I have ever seen. I am amazed by your strength. You are a true role
model and an inspiration. I wish you much success in all your endeavors. Carpe Diem! |
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submitted on June 8, 2009 8:37 PM EDT |
Name: |
Liam Crotty |
Email Address: |
liamcrotty@gmail.com |
Do you or does someone you know have ALS? |
yes |
How did you hear about this site? |
friends on twitter. |
Comments: |
Beautiful website! My heart goes out to you and your family. |
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submitted on June 8, 2009 8:07 PM EDT |
Name: |
Michelle Farr |
Email Address: |
farr.michelle@yahoo.com |
Do you or does someone you know have ALS? |
Familial ALS |
How did you hear about this site? |
Friend on Facebook |
Comments: |
Please know there are many of us out here that shine with you! Our family has been accosted by ALS for nearly 200 years -
Back when it was known as the "Creeping Palsy" or "Farr's Disease". Keep up your strength and know you are loved! |
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submitted on June 8, 2009 4:11 PM EDT |
Name: |
Kathy |
Email Address: |
kmlewis55@aol.com |
Do you or does someone you know have ALS? |
My Mom 1935-2007 |
How did you hear about this site? |
Facebook |
Comments: |
Aimee, More than anything I wish they would find a cure. I will be an ALS advocate for as long as I live. I will pray for
you. |
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submitted on June 8, 2009 3:46 PM EDT |
Name: |
Patricia Gillman-Smith |
Email Address: |
pattysmith@comcast.net |
Do you or does someone you know have ALS? |
I HAVE ALS |
How did you hear about this site? |
FACEBOO |
Comments: |
LOVE YOUR SITE.. AND SO SAD THAT YOU HAVE THIS HORRIBLE DISEASE AT SUCH A YOUNG AGE. I HAVE RAISED MY FAMILY AND NOW HAVE
GRANDCHILDREN THAT I CAN'T HOLD OR PICK UP. BUT THAT IS OK BECAUSE I STILL ENJOY SEEING THEM. GREATFUL TO KNOW SO MANY PALS.
PAT |
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submitted on June 8, 2009 3:09 PM EDT |
Name: |
Laura Stanley |
Email Address: |
LSTA118286@AOL.COM |
Do you or does someone you know have ALS? |
At least 34 members in my family!! |
How did you hear about this site? |
Facebook |
Comments: |
Such a tragedy!! Keeping you and your family along with all others affected by this disease in prayer!! I promise to keep
fighting against this disease until a cure is found!! Together we will all make a difference!! God Bless all of you!! Thank
you for creating awareness!! |
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submitted on June 8, 2009 12:48 PM EDT |
Name: |
Kassi Figueroa |
Email Address: |
WitchofALS@gmail.com |
Do you or does someone you know have ALS? |
I lost my mother to ALS, she was 44. I've lost three other family members to ALS. |
How did you hear about this site? |
Michele Dupree |
Comments: |
Those of without ALS have a responsibility to be your voice, Amy. We will never give up the fight. MUCH LOVE. |
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submitted on June 7, 2009 4:05 PM EDT |
Name: |
Tracie |
Email Address: |
t.toleno@comcast.net |
Do you or does someone you know have ALS? |
Yes, My Mother who is 64 |
How did you hear about this site? |
Team inspire/ALS Advocacy support |
Comments: |
I'm so sorry about this disease. It has been extremely hard to see my Mother go thru this. You sound like a great Mother!
God bless you and your family. |
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submitted on June 7, 2009 1:46 PM EDT |
Name: |
fZSpAoXNCfNRpPp |
Email Address: |
lGIJNBPnYYB |
Do you or does someone you know have ALS? |
cfgyatkTcAKVJEOqON |
How did you hear about this site? |
HSMRAENcu |
Comments: |
tYgN9Z <a href="http://ntpgchseuaev.com/">ntpgchseuaev</a>, [url=http://cdkcmdirtdtz.com/]cdkcmdirtdtz[/url], [link=http://wgnlhtmqdysr.com/]wgnlhtmqdysr[/link],
http://algxelpunuin.com/ |
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submitted on May 29, 2009 6:01 PM EDT |
Name: |
Carolyn Litwinski |
Email Address: |
litwins6@aol.com |
Do you or does someone you know have ALS? |
no |
How did you hear about this site? |
Alpha Gamma Delta Quarterly |
Comments: |
From one sister to another, wishing you and your family all of the best. You are all in my thoughts and prayers |
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submitted on May 29, 2009 6:00 PM EDT |
Name: |
Carolyn Litwinski |
Email Address: |
litwins6@aol.com |
Do you or does someone you know have ALS? |
no |
How did you hear about this site? |
Alpha Gamma Delta Quarterly |
Comments: |
|
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submitted on May 29, 2009 4:24 AM EDT |
Name: |
Jon Mack |
Email Address: |
rcjmack@msn.com |
Do you or does someone you know have ALS? |
no |
How did you hear about this site? |
|
Comments: |
I went to high school with Jim. My best to you and your family. |
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submitted on May 27, 2009 8:26 AM EDT |
Name: |
Suzanne Clark |
Email Address: |
sclark0629@gmail.com |
Do you or does someone you know have ALS? |
YES |
How did you hear about this site? |
a sign on a car |
Comments: |
My grandfather was 65 when he died from ALS, he had it for about six or seven years and literally joked the whole way to the
grave. He had such high energy and hopes through his whole ordeal even though he no longer had use of any body movements.
Hang in there and my prayers are with you and your family. |
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submitted on May 25, 2009 12:29 PM EDT |
Name: |
Kaaren Parker |
Email Address: |
kpeaches@cox.net |
Do you or does someone you know have ALS? |
no |
How did you hear about this site? |
Article in the Alpha Gam Quarterly |
Comments: |
Aimee, I was touched by your story... I was an Alpha Gam at West GA. 85' to 89'. My thoughts and prayers are with you, your
husband and your beautiful children. God loves all of you.. Keep smiling and remember how much you are an inspiration to
so many. God bless! |
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submitted on May 22, 2009 3:49 PM EDT |
Name: |
Amanda Helm |
Email Address: |
gabrielsmom813@att.net |
Do you or does someone you know have ALS? |
no |
How did you hear about this site? |
Mundelein Review |
Comments: |
Hi Aimee! I think that you're an inspiration and your family are amazing people. God bless you and your family as you fight
this battle. |
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submitted on May 20, 2009 12:43 PM EDT |
Name: |
Lee Ann Danner |
Email Address: |
iusemiles2fly@msn.com |
Do you or does someone you know have ALS? |
My mom |
How did you hear about this site? |
repeat visitor |
Comments: |
Hi Aimee, just thinking of you today. Planning a trip to Chicago this summer for my son's camp and you were on my mind. Also,
working in my home office today and admiring several pictures of my mom, who had ALS. Miss her so much and pray often for
a cure. Have a wonderful day! |
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submitted on May 20, 2009 8:49 AM EDT |
Name: |
Gina Shumake |
Email Address: |
fishcamp@rose.net |
Do you or does someone you know have ALS? |
my husband Allen |
How did you hear about this site? |
Alpha Gam Quarterly |
Comments: |
Aimee
I was a Gamma Delta at Auburn Univ. (1986)My husband Allen was diagnosed with ALS in 2001 at 41. We fought hard for four years.
I am now on the Georgia ALS Board and we have just started a support group in Southwest Ga for PALS and CALS. You, like Allen,
are an inspiration to eveyone. |
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submitted on May 18, 2009 10:22 PM EDT |
Name: |
Tiffany Ward |
Email Address: |
ctj2000@charter.net |
Do you or does someone you know have ALS? |
yes my mother |
How did you hear about this site? |
a friend |
Comments: |
Thank you for fighting this terrible disease. My mother is a fighter too! I dont want to see a day without her although I
hate witnessing her suffering. |
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submitted on May 16, 2009 4:20 PM EDT |
Name: |
Audra |
Email Address: |
audrafisher@netscape.net |
Do you or does someone you know have ALS? |
no |
How did you hear about this site? |
Alpha Gamma Delta Quarterly |
Comments: |
|
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submitted on May 16, 2009 11:56 AM EDT |
Name: |
David W Ethridge Jr. |
Email Address: |
walllaceethridge@yahoo.com |
Do you or does someone you know have ALS? |
Yes (me) March 23 2009 |
How did you hear about this site? |
From my sister |
Comments: |
My sister is the mother-law of Amy Munro, Amy went to collage with you. Starting down a new road in my life, with Gog as my
guide. |
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submitted on May 16, 2009 12:54 AM EDT |
Name: |
Denise Goldsmith Werner |
Email Address: |
denisewerner@bellsouth.net |
Do you or does someone you know have ALS? |
no |
How did you hear about this site? |
AGD Quaterly |
Comments: |
Aimee,
Just wanted you to know I was thinking about you. Your family is beautiful and I am so proud of you and your attitude about
your life. I will try to remember to pray for you and your family daily. Reading your blog helps me to keep things in perspective.
Tell Jim I said Hi.
Denise |
|
submitted on May 15, 2009 11:18 AM EDT |
Name: |
Mary |
Email Address: |
SalsaDancer60@yahoo.com |
Do you or does someone you know have ALS? |
|
How did you hear about this site? |
|
Comments: |
Hi Aimee, I check your website every day. What's going on lately? Please update when you have a chance.
Prayers are with you,
Mary Q. |
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submitted on May 5, 2009 4:02 PM EDT |
Name: |
Jenn |
Email Address: |
|
Do you or does someone you know have ALS? |
no |
How did you hear about this site? |
bumper sticker |
Comments: |
I saw this website on a car in front of me, on a bumper sticker, while driving to work this morning. I will say a prayer
for you and hope they find a cure. |
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submitted on May 4, 2009 2:26 PM EDT |
Name: |
Brooke Dorow |
Email Address: |
brookedorow@wi.rr.com |
Do you or does someone you know have ALS? |
Yes, My dad died of ALS |
How did you hear about this site? |
Nightline |
Comments: |
Amy,
You are such an inspiration to me..I lost my dad from ALS a few years ago when he was 52yrs. old. Since then, I have had
2 boys, who he will never get to meet. I am terrified that someday I or my children will get ALS. It truly is, I believe,
one of the worst, if not the worse diseases around and I can't believe how many people don't even know what it is. I am tired
of having to explain it to them because I know I am not doing a good enough job of explaining how horrible it is and how important
it is to find a cure.
But seeing you and reading your stories touches me and gives me hope. I wish I could meet you in person and I pray for you
and your family often. Thank you so much for sharing your story. |
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submitted on May 2, 2009 7:15 PM EDT |
Name: |
Joanie Brown |
Email Address: |
joanart@hotmail.com |
Do you or does someone you know have ALS? |
My daughter died last year, at 29, a year from her diagnosis. |
How did you hear about this site? |
Michelle Conrady-Brown's sister Traci Graue |
Comments: |
I want to do a feature for Mother's day, on Mothers with ALS. I have not heard back from you, but if I get it up and you do
not like it, I will remove it. http://www.keribstill.com I want to use Aimee's picture. Sorry to send this again! |
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